Last fall we wrote about bone marrow registry drives fueled by love for Leni Hsiao, a now nine month-old hapa cutie (Chinese and Jewish) who was diagnosed with a rare form of leukemia. There have been several fundraising and awareness events inspired by Leni, and now one is coming to LA.
The event will feature artwork and items from these generous creators, with all proceeds going towards Leni’s medical expenses:
Alelli Tanghal, Alice Dison, Amanda Lopez, Anthony Samaniego, Aryo Toh Djojo, Bam and Lanie Barcena, Bill McMullen, Cern, Charlie Becker, Chase, Claw Money, Dallas Clayton, Daniel Racz, David Choe, Deanne Cheuk, Dez Einswell, Dorothy Hong, Dwindle, Eileen San Felipe, Faile, Gary Baseman, Geoff McFetridge, Hassan Rahim, HVW8 Gallery, Indie 184, James Jean (Hundreds), Jessica Rivas, Jordin Isip, Justin Krietemeyer, Katsuo Design, Kristofferson San Pablo, Matt Goldman, Michael C. Hsiung, Nomade, Our Open Road/Adam Harteau, Perfekt World, Rachel Pitler Hsiung, Raphael Tanghal, Rich Jacobs, Rich One (NASA Crew), Rich Tu, Ryan McGinness, Sayori Wada, Shepard Fairey, Stephen Platt, Stephen Stickler, Steven Harrington, Tamar Levine, Theme Magazine, Tim Biskup, Tobin Yelland, Tofer Chin, URNY, Vanessa Salle, Vashtie, Vicki Yeung and others. Other items are available to bid on by Adidas, Girl/Eric Koston, Han Cholo, Innovative Leisure Records, Jen Lu/Hook Ups Decks, Karlita Designs, Knotwork LA, Knowhow Shop, lovejac, The Oinkster, Maximiliano, Sony BMG, Public School, Rick Williams, Talib Kweli, Warby Parker, YogaVibe and more. Bake sale goods provided by Ticings.
In an interview with Amanda Hsiao, mom to Leni and her big sister Mae, we learn more about leukemia, Leni, and the love she’s inspired.
GR: Can you talk a bit about Leni’s initial diagnosis and what kind of support was available for you as a family dealing with leukemia?
AH: Leni’s initial diagnosis was obviously a shock to us. We are not from families that have a history of a blood cancer, or any type of cancer for that matter. We come from very different national and religious backgrounds which is thought to lessen the odds of having a genetic diseases or abnormalites, so it took a long time to accept what we were hit with. Also, the fact that her type of leukemia is extremely and incredibly rare, it made us even more shocked then we already were.
Immediate support came from our amazing friends who helped us with our other daughter Mae, and our dog Luna. Support also came from our wealth of friends who volunteered to order us dinner every night at the hospital. You cannot imagine the gratitude I have for this. Support came from friends who ran our websites, blogs, and Instagram to help us get the word out for help, support and awareness. Support came from an amazing team of doctors and nurses who initially treated her and ultimately saved her life. Support came from charities like Friends of Karen and Red Dog Foundation – just two of a bunch that immediately helped us financially. Ironically, we consider ourselves lucky in an extremely unlucky situation with what support we had as this was all happening.